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How Stigma Leads to Sickness

Segment One of Cultural Humility & Reducing Stigma and Discrimination Resources

Adherence to HIV care and treatment recommendations is essential for ensuring health, longevity, and a suppressed viral load among people living with HIV (PLWH). A growing body of literature suggests that fears and experiences of HIV-related stigma not only affect the quality of life and mental health of PLWH but are also related to poor engagement in HIV care and treatment.

Click on any of the tabs below for additional information.

Click on the links below to download any of the resources.

Step 1

Hand the cards 1-6 out to six volunteers.

Step 2

Watch the video (8:34).

Step 3

Ask a volunteer to read their quote and discuss the following with your group after each statement.

  • The dimensions of HIV-related stigma
  • How these dimensions affect health outcomes/li>

Hearing different voices read these real quotes from people with HIV helps reinforce understanding and maintains group focus.

Step 4

Pass out additional resources.

Enacted Stigma

Manifests as Discrimination

“They look at you funny… the’re scared to touch behind you, sit behind you.” – (Man/Woman living with HIV, Alabama, FRESH Study focus group)


Community Stigma

Perceptions of Community Norms

Perceptions of high levels of HIV-related stigma in the community can have negative effects on PLHIV.


Anticipated Stigma

Manifests as Fear

“In [town], you might get jumped on if they find out.” – (Man/Woman living with HIV, Alabama, FRESH Study focus group)


Internalized Stigma

Manifests as Self-stigma

“Feels like nobody wants you, very alone, lonely.” – (Man/Woman living with HIV, Alabama, FRESH Study focus group)